Archives for the month of: November, 2015

#LCAM15     17,280 people were diagnosed with lung cancer in November alone. Every 2.5 minutes, another person hears the words that will forever change their life… and everyone around them.

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To help raise awareness and shed light on lung cancer a group of lung cancer bloggers, made up of survivors and caregivers, wrote a profile every day in November. November is lung cancer awareness month and it is my passion to educate others so everyone knows: ANYONE CAN GET LUNG CANCER.

Many of the people profiled I’ve met in person, some I only “know” online, and a few I was just introduced to. I learned something from each profile and I hope you did too.

The fact is: YOU TOO will be touched by lung cancer in your lifetime. It may be a spouse, a child, other family member, co-worker, neighbor, or yourself – but we will ALL be affected one day. I don’t say this to scare you, but to inform you.

When that day comes, please remember that no one deserves this disease. We all deserve compassion, love, and kindness. Any cancer diagnosis is scary; it’s the words we all dread hearing. Yes there are risk factors, but there is also just bad luck and basic cellular biology.

love compassion

I thank those of you that took the time to not only read these profiles, but shared them in hopes of educating others. I pray you continue to share your knowledge with others when the occasion arises. I also thank all the bloggers who poured their hearts into this awareness campaign.

We’re stronger together!

If you missed any of the profiles or just want to read them again, you can find them all here: http://lcsmchat.com/

November may be over,
but for those with lung cancer,
the struggle continues 365 days of the year.

Jeff McManus – “I used to be a loner before meeting Cara.”

Jeff was a caregiver for his wife, Cara, who passed away in April 2015. She only survived 20 months after being given her stage IV lung cancer diagnosis. They met in 2006 and quickly became good friends. They would have been married for 4 years in June of that year. Jeff confessed to me, “I used to be a loner before meeting Cara. She brought me out of my shell and we started hanging out with friends.”

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Jeff has a PhD in biology and works full time in a research lab. He enjoys his work and his coworkers. In his free time he likes playing trivia with his friends, going to Indie rock concerts, and cooking. He and Cara both loved cooking and often made meals together. He also likes to stay active by riding his bike, another fun activity him and Cara did together, lifting weights, and playing basketball.11701206_10206467281536895_7748489362918094982_n

Jeff became involved with advocacy along with Cara. He raises awareness on Facebook and Twitter to help inform others. Lungevity’s Breathe Deep in Cleveland came about largely due to her efforts. She worked on this project for much of her last year, but unfortunately was not there for the event. She passed away just 2 months before so Jeff spoke in her honor about how much it meant to her. This is something he says he’ll continue. cara

Cara had the ALK mutation but none of the 7 treatments she tried worked for very long.

Jeff confided, “Cara’s passing took everyone by surprise, including her doctors. It happened so fast.”

How did you manage to get through the day after her passing?
“Initially, I was just shocked. The immediate aftermath kept me busy with the funeral and going through her things with her family. It gave me something else to focus on and I had a lot of support from family and friends.” He also befriended a woman online whose husband had just passed away from lung cancer as well. This helped him get through the tough times.

Something you might not know about Jeff is he’s big Star Wars fan. Jeff and Cara actually watched Return of the Jedi on their first date. In fact, his twitter handle: Jeff3263827, is a Star Wars reference.

What inspires you?
“Cara’s life was an inspiration to me because she had something really horrible happen to her and in spite of that, she had a great attitude and continued to live her life. I carry her spirit with me.”

You can read more about their journey on Cara’s blog:http://metastaticfantastic.blogspot.com/

Each day during Lung Cancer Awareness Month (November), a lung cancer blogger will share a brief profile of someone involved with lung cancer. The person profiled might be a patient, caregiver, advocate, researcher, or healthcare provider.
Yesterday Luna Okada profiled Rachel Willeford on her blog http://lunaoblog.blogspot.com/
Tommorow’s post will be on http://samlmixon.blogspot.com/ where she will profile Roz Brodsky..
All profiles can be found the day after posting on the #LCSM Chat blog at http://lcsmchat.com/. A list of links to all the profiles on the original bloggers’ pages can be found at on the #LCSM Chat site on the Profiles in Lung Cancer page.

Denise Cutlip – One of the neatest ladies I’ve ever met.
Twitter: @dennycee

I originally “met” Denise online, who is known as Denzie on Inspire.com. She helps other survivors by sharing her insight and support often going on several times a day, including when she can’t sleep in the middle of the night. She told me “I saw the hopelessness in my family’s eyes when I was diagnosed and I want to help alleviate that for others.” I have no doubt that she has. Anyone who has ever talked to, or met her, can see the genuine compassion and love she has for others.

I got the pleasure of meeting Denise in person at Lungevity’s Hope Summit in DC in 2014. She had vibrant purple hair and an infectious smile. She is a wonderful woman that has really touched my heart.

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Her connection to lung cancer-

Denise is no stranger to lung cancer. Her father passed away when she was just 15 from mesothelioma from working in boat yards and the plastic industry. She then lost her mother to adenocarcinoma lung cancer in 2006 shortly after being diagnosed. So when Denise was diagnosed on 10-10-10 with stage IV adenocarcinoma, her first thought was “Oh crap! What can I do to live longer than 6 months?”

She was given 15 months to live and she felt like she lost all of her independence. She did some research and later connected with other survivors on Inspire. Learning and sharing with others in her position is what gave her courage and hope to carry on. Even though her family just wanted her to rest, she did not want to be a burden on them. So she slowly started doing little things around the house, not only to contribute, but to also feel like a productive person again. She also started with short walks down the driveway, which eventually graduated to down the street, and then to a whole mile. She was finding her “new normal.”

This journey has not come without its hurdles. She had aggressive, concurrent chemo and radiation that kept her disease free for 3 years. But during that time she endured 4 vertebral fractures due to weakened bones, and procedures to deal with the fluid in her lungs and surrounding her heart.

As if dealing with lung cancer is not enough for one person, she was diagnosed with stage I breast cancer in 2014. She confessed “After dealing with stage IV lung cancer, I wasn’t scared about breast cancer at all. It was more of a nuisance. I learned a lot of tools about how to be involved with the decision making.” She had a lumpectomy and radiation and is now cancer free again.

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A typical day for Denise:
“ I’ve taken back as much as my previous life as possible.” Working 2 days a week at her previous job scheduling at a radiology office for breast cancer screening, going to the gym a few days a week at the senior center, and driving her cousin or friends to doctor appointments is what keeps her busy. She loves to ride her bike and bake and somehow finds the time to volunteer with ACS community events, such as music festivals, heritage festivals, and info tables at events to educate the public about lung cancer. “I want to correct the misconceptions about it.”

What are you looking forward to? “The holidays and having family over. I love to cook.”

Something you might not know about her-
In the late 70s and early 80s she was a DJ of a punk rock radio show! Of course this totally explains the purple hair she loves to don. She still likes listening to Sid Vicious and the Sex Pistols, The Clash and The Stranglers. This just makes me love her even more!

What do you want others to know about lung cancer?
“It’s not an automatic death sentence. When the doctor tells you you have only a few months to live, it’s based on a curve and no one can predict where you’ll be on that curve.”

What brings you hope?
“New research. That is the hope for the future. I believe that we can survive this. They’re coming up with new treatments all the time and I really think we can live with this as a chronic disease one day.”

It was my absolute pleasure hearing and sharing Denise’s story. She not only made it past 6 months, she’s made it past 5 years and is doing well. I know she will inspire you, just like she has me.

Each day during Lung Cancer Awareness Month (November), a lung cancer blogger will share a brief profile of someone involved with lung cancer. The person profiled might be a patient, caregiver, advocate, researcher, or healthcare provider.

Yesterday Kim Weineke profiled Anne Gallagher on her blog. Read about it here http://aquariusvscancer.com/
Tommorow’s post by Janet Freeman-Daily will be on http://grayconnections.net/, where she will profile Dr. Ross Camidge.
All profiles can be found the day after posting on the #LCSM Chat blog at http://lcsmchat.com/. A list of links to all the profiles on the original bloggers’ pages can be found at on the #LCSM Chat site on the Profiles in Lung Cancer page.

It’s November, which is Lung Cancer Awareness Month. In honor of this, a group of lung cancer bloggers will be interviewing people in the lung cancer community and profiling a patient, caregiver, advocate or health care provider each day. I will be posting them for your enjoyment. I am excited to participate and help raise awareness.

Andy Trahan – “If you have lungs, you’re at risk for lung cancer.”
A 35 year old father of 3, husband, and stage 4 lung cancer survivor. Diagnosed 2-14-13

Andy has been involved in advocacy by speaking to Representatives and Senators to share his story. Along with LCA he helped convince them to sign the bill for Low-Dose CT as a screening option. He and his wife, Leslie, also got a lung cancer specialty license plate in their state of Louisiana. He occasionally connects with other survivors that need support. His dad does a lot of research and connects with other survivors too and his sister created a Facebook page “Andy’s Team.” His brother has helped Andy with his work when he’s not up to doing it himself. Everyone has come together and has a role in the family to support Andy.

the kids' first day of school this year

the kids’ first day of school this year

What is a typical day like for you? I work from home sending reports to banks and finance companies so I drop my kids off at school then work on the computer. I play tennis or go to bible study and then it’s time to pick the kids up from school. The kids have practice so I take my daughters to dance or soccer and my son to flag football. Leslie usually starts dinner, I help the kids with baths, and we eat supper together.
As a family we like to go to the movies. We see almost all the kid appropriate movies out there. The weekends are filled will ball games for the kids and we go to Mass on Sunday and watch the Saints during football season.
What is something people might not know about you – I got symptoms in my freshman year in high school and was diagnosed with narcolepsy. I get a warning ahead of time and get really sleepy, but I take meds to help so I don’t have to live in a bubble 

How are you right now? Physically, I’m doing as well as I ever did before cancer. I’m also at my best place emotionally right now. I’m on a clinical trial and medically, I just got the best scans a few weeks ago…. so I’m doing good.
What do you want people to know about LC? If you have lungs, you’re at risk for lung cancer.

What brings you hope? Seeing new drugs go into trials. That means that I might have another year or two added to my life. The big hope is to skate on these drugs long enough so that the medical breakthroughs stay one step ahead of my cancer until there’s a cure.
I met Andy and Leslie 2 ½ years ago right after his WBR. Their faith and the love they share really touched me and I jumped at the chance to interview him. Thanks Andy!

Each day during Lung Cancer Awareness Month (November), a lung cancer blogger will share a brief profile of someone involved with lung cancer. The person profiled might be a patient, caregiver, advocate, researcher, or healthcare provider.
Yesterday Jill Feldman was profiled by Luna Okada on her blog “Cancer…an unexpected journey.” http://lunaoblog.blogspot.com/
Tommorow’s post will be on http://lil-lytnin.blogspot.com/ where Tori Tomalia will profile Brendon Stiles, MD.
All profiles can be found the day after posting on the #LCSM Chat blog at http://lcsmchat.com/. A list of links to all the profiles on the original bloggers’ pages can be found at on the #LCSM Chat site on the Profiles in Lung Cancer page

life and breath: outliving lung cancer

for the terminally optimistic

Lunging it up. Fighting lung cancer at 22.

Living with stage IV lung cancer - By Lysa Buonanno

Emily Bennett Taylor

EmBen used to kick butt on the volleyball court, now she's kicking cancer!!

Every Breath I Take

a blog about my journey with lung cancer

A Lil Lytnin' Strikes Lung Cancer

Living with stage IV lung cancer - By Lysa Buonanno

Gray Connections

Perspectives on Lung Cancer, Brain Science, and Other Stuff

life and breath: outliving lung cancer

for the terminally optimistic

Lunging it up. Fighting lung cancer at 22.

Living with stage IV lung cancer - By Lysa Buonanno

Emily Bennett Taylor

EmBen used to kick butt on the volleyball court, now she's kicking cancer!!

Every Breath I Take

a blog about my journey with lung cancer

A Lil Lytnin' Strikes Lung Cancer

Living with stage IV lung cancer - By Lysa Buonanno

Gray Connections

Perspectives on Lung Cancer, Brain Science, and Other Stuff